any have Central Centrifugal Cicatricial Alopecia?

Discussion in 'Hair Care Tips & Product Review Discussion' started by tHENATuRALhAiRpRoJEcT, Jul 28, 2010.

  1. cheetarah1980

    cheetarah1980 Well-Known Member

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    Yo, this scope is soooo hard to get through. She keeps interrupting herself to beg for hearts. Chick, stop detouring and answer the freaking question. She was about to answer a question about JBCO and got two sentences into it and then started demanding hearts. Jeez!!
     
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  2. ilong

    ilong God's Own

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    @Karribean_Kurls - were you having a consultation for a hair transplant? I see the hair line penciled in, which is usually what HT surgeons do.
     
  3. ilong

    ilong God's Own

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    @nycutiepie - have you checked out this thread?
    https://longhaircareforum.com/threads/the-official-hair-transplant-thread.761131/

    There are other ladies on the forum who have had, researching or scheduled for hair transplants. I think more and more hair loss sufferers are realizing that a hair transplant is the only course of action to restoring their hair.
     
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  4. MileHighDiva

    MileHighDiva A+ Hair Care Queen

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  5. cheetarah1980

    cheetarah1980 Well-Known Member

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    Thank you for sharing. She makes CCCA seem almost insurmountable. I'd like to think I won't have to use Rogaine for the rest of my life. While I know that treatment will never stop (especially if we're looking to regrow hair) I have to think that there are more natural remedies. I wonder if she's researching the role of diet, proper hydration, scalp cleansing, and natural topical aids in halting scarring alopecia and promoting regrowth in areas that have yet to scar. Also have they researched how to remove scar tissue from the follicle so it can once again be viable?
    I see my dermatologist on 7/1 and I'm really hoping that she can tell me there's been progress. I know the natural route is slow but thus far all I've seen is a decrease in shedding. I'm starting my last 30 days of Viviscal and I'm praying to see some baby hairs sprout by the 3 month mark. I'm trying to avoid steroid shots (which my derm is also against).
     
  6. mamaline

    mamaline Active Member

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    I just got my scalp biopsy results back with this diagnosis yesterday. I go back to the dermatologist on Thursday to discuss treatment options. I don't know how extensive my CCCA is. I feel like it's pretty bad, but other people tell me that they can't tell. The pain I have in my scalp is horrible. I've had for almost two months now. Hopefully the doctor can give me something that will provide some relief. I've been doing scalp massages with emu oil for the past two weeks. It hasn't really helped with the pain.
     
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  7. nycutiepie

    nycutiepie Well-Known Member

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    So sorry to hear this but one derm told me it is treatable. Don't give up hope. I have traction alopecia and I'm getting a transplant.
     
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  8. cheetarah1980

    cheetarah1980 Well-Known Member

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    I fell off my regimen during the summer, both hair care and nutrition wise. I'm getting myself back together now. I just washed my hair and did an ACV rinse. I'm super nervous about detangling it because I'm scared of how much hair I'll lose. However, I did notice that I've gotten a good deal of growth in the last 6 weeks. I think it's because I've continued with the Viviscal and other vitamins (I ran out of some and didn't replenish for a bit but I'm back on all of them now). Also I went to a trichologist who confirmed the CCCA diagnosis and put me on Rogaine. It's only been about a month so we'll see how it goes. She also tested my iron and vitamin D, but I haven't received those results yet.
     
  9. Evolving78

    Evolving78 Well-Known Member

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    I’m back in this thread again... I have some matcha tea powder. It’s not the best though.. I’m mad! I spent 18 bucks on it! Lol
    But I will look into getting pumpkin and green tea. I also need to get back drinking beet juice.

    I have been using my special blend of oil and have been using Wild growth oil.

    I have hair growing back in my all of my spots, but I was considering using Rogaine. Since I don’t have severe CCCA, I can use that and not have to worry about having to continue to use it. I’m not ready to go natural either. I have been looking into a system that can keep my hair straight, but I have to use a sulfate shampoo to keep my scalp clean. I know I can’t use lye relaxers anymore. Too harsh on my scalp. And I can’t use hair color, or other things on my scalp. I used something last time and it messed me up.
     
  10. Evolving78

    Evolving78 Well-Known Member

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    Have you used the Rogaine?
     
  11. cheetarah1980

    cheetarah1980 Well-Known Member

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    Using Rogaine now. It helps a bit. At my last trichologist appointment the six month update pictures showed good progress. My middle part in front seems to be widening but I'm doing what I can to slow that down and potentially reverse it. It's an everyday struggle.
     
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  12. Evolving78

    Evolving78 Well-Known Member

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    I’m gonna try this bald spot recovery serum from Hawaiian Silky. It has garlic in it. I’m going to see if it helps with shedding. I also got another comb. I feel like my other comb is tearing my hair out. I’ll see how this serum works for 30 Days, then I will switch to Rogaine, if there is no improvement. I have hair growth in my patches, but I really wanna heal my scalp, without medication.
     
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  13. Evolving78

    Evolving78 Well-Known Member

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    I plan on getting some wheatgrass powder too.
    I got a list of things I wanna get
    Some more DE peppermint and Aloe shampoo
    Garlic supplements
    Wheatgrass powder
    Pumpkin seed oil supplements
    Wild growth oil yellow and white bottle
    DE silk spray. (Builds chemically treated hair back up)
    DE restore vitamin
     
  14. ilong

    ilong God's Own

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    @shortdub78 - give careful consideration to using Rogaine. From everything I've read - once you begin using it, it requires consistent long term use, otherwise hair growth will terminate and digress.
    Have you tried the other recommendations?
     
  15. ilong

    ilong God's Own

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    Have you considered purchasing garlic oil on your own and adding it to your existing products? Mahabhringaraj (Bhringraj) Oil is a staple for me. I add it to my Shea Butter hair pomade that I make, along with other oils, such as garlic oil.

    Here is an old thread on it:

    https://longhaircareforum.com/threads/mahabhringraj-oil.173271/

    I purchase mine from a local Indian grocer in my area.
     
  16. Evolving78

    Evolving78 Well-Known Member

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    Is it odorless? I wanted to take the supplement for cardiovascular reasons too.
     
  17. discodumpling

    discodumpling Well-Known Member

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    It has been a couple of years since my scalp issues were a major problem. I have hair in my bald spot it grows like the rest of the hair on my head and doesn't get dry, brittle and fall out any more. With time and treatment the texture is now the same as the surrounding hair.
    I still take vitamins regularly...either a multi or sometimes just a B-complex. However the key for me is and has always been consistency.
     
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  18. Evolving78

    Evolving78 Well-Known Member

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    Do you know what was causing the hair loss?
     
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  19. ilong

    ilong God's Own

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    @shortdub78 - the oils are not odorless. Both have somewhat of a smell.
     
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  20. discodumpling

    discodumpling Well-Known Member

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    I chalked it up to almost 30 yrs of relaxers. My scalp was scarred,(yet smooth) tender red angry, tight and itchy before I began my hair journey.
     
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  21. Evolving78

    Evolving78 Well-Known Member

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    I have the DE aloe and peppermint shampoo. It helps calm down my scalp. I like the DE Express Almond butter conditioner, but it got on my scalp and caused itching. I know for sure I will not be cowashing and sticking to washing 2 a week. I started using Rogaine, but haven’t used it in a few days. It causes dryness. Right now, I’m just looking for ways to keep my hair from being dry.
    I will get the pumpkin seed oil supplements today. I know drinking water will be the major key to getting this dryness at the roots under control.
     

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