tffy2004
New Member
Hello Sisters.
I just wanted to tell you all my little mans story and ask that you pray for him tonight and tomorrow. His name is Jordan Christopher and he will be 2 April 28 of next year.
When I was pregnant with him they found something on his kidney they thought to be a cyst. The day after he was born they did an ultrasound to confirm something was there and it was. At the age of two months they did a repeat ultrasound to see if it grew and it did. At the time we were living in South Dakota about to move to Nebraska so his doctor referred us to a specialist at Children's Hospital in Omaha, Nebraska.
Once we moved to NE he was put on medication to ward off any urinary infections and we went to Omaha to have an ultrasound. At that visit they gave us a name for condition which is Pelvetasis. He was 4 months old at this visit and they decided to keep him on the medicine until the next visit where they would do a MAG-3 test(this test is to see how long it takes the kidney to void fluid time limit is 20 min) What they do is they insert a catheter through his penis and put this special die into his kidney, then we just wait and see how long it takes for him to pee it out.
At the next visit after still being on meds they did the test and it took 19 min to void the fluid. They scheduled another test to see how long it would take when he is off the meds but due to money issues we couldn't make that appointment, which brings us to now.
We are now living in North Dakota where they don't have Pediatric Nephrologists. We tried to make an appointment with the Mayo Clinic in Rochester, Minnesota but approval wasn't granted because they are able to do the tests here(we have medicaid). After the tests are done tomorrow and if anything shows up on them as abnormal then we will be approved to go to the Mayo Clinic.
If it takes him longer than the 20 min to void the fluid they put in his kidney then we may have to consider surgery to try and repair the kidney.
Here is a diagram of the kidney the blue part labeled with the letter C is the part that is bigger than it should be and what may be causing the problem.
The thing I am concerned about is here to do the test they are going to do a concious sedation which scares me because he is so small. We made an appointment with his doctor and talked to her yesterday about it and they will try to strap him down like they did in Omaha but if that doesn't work they will have to sedate him.
Please pray that he will be ok.
Thank you and God Bless.
Edit to Add:
My children have their own folder on my fotki page named My Babies the password is: theboys . Jordan is the youngest by 10 months. Our other son is Steven III.
I just wanted to tell you all my little mans story and ask that you pray for him tonight and tomorrow. His name is Jordan Christopher and he will be 2 April 28 of next year.
When I was pregnant with him they found something on his kidney they thought to be a cyst. The day after he was born they did an ultrasound to confirm something was there and it was. At the age of two months they did a repeat ultrasound to see if it grew and it did. At the time we were living in South Dakota about to move to Nebraska so his doctor referred us to a specialist at Children's Hospital in Omaha, Nebraska.
Once we moved to NE he was put on medication to ward off any urinary infections and we went to Omaha to have an ultrasound. At that visit they gave us a name for condition which is Pelvetasis. He was 4 months old at this visit and they decided to keep him on the medicine until the next visit where they would do a MAG-3 test(this test is to see how long it takes the kidney to void fluid time limit is 20 min) What they do is they insert a catheter through his penis and put this special die into his kidney, then we just wait and see how long it takes for him to pee it out.
At the next visit after still being on meds they did the test and it took 19 min to void the fluid. They scheduled another test to see how long it would take when he is off the meds but due to money issues we couldn't make that appointment, which brings us to now.
We are now living in North Dakota where they don't have Pediatric Nephrologists. We tried to make an appointment with the Mayo Clinic in Rochester, Minnesota but approval wasn't granted because they are able to do the tests here(we have medicaid). After the tests are done tomorrow and if anything shows up on them as abnormal then we will be approved to go to the Mayo Clinic.
If it takes him longer than the 20 min to void the fluid they put in his kidney then we may have to consider surgery to try and repair the kidney.
Here is a diagram of the kidney the blue part labeled with the letter C is the part that is bigger than it should be and what may be causing the problem.
The thing I am concerned about is here to do the test they are going to do a concious sedation which scares me because he is so small. We made an appointment with his doctor and talked to her yesterday about it and they will try to strap him down like they did in Omaha but if that doesn't work they will have to sedate him.
Please pray that he will be ok.
Thank you and God Bless.
Edit to Add:
My children have their own folder on my fotki page named My Babies the password is: theboys . Jordan is the youngest by 10 months. Our other son is Steven III.
Last edited:
I stand corrected, for this baby of yours will not be neglected in prayer, and neither in the heart of God our Father in Heaven. Now I have you, your husband, Steven the Prophet and your little covered in soft pillows of Heaven's love, from God above.
